7:30 Sophia was awake and waiting for us when we arrived at the hospital. She had a fever of 102.5 overnight that they managed to bring down but they just took her temp again and it is back up. They decided... more

8:15 After a long and sleepless night, the day started off with us getting up at 4 and rushing to get everything ready and get a bite to eat before arriving at the hospital by 5:30. Intake was kind of... more

Sophia had a busy week this week. Luckily for her, it started off with a continuation of the massage lesson. We learned the tummy and back massages, which are supposed to help with constipation. Massaging... more

The week started out with the (now healthy) nurse coming to give Sophia her shot of Synegis, which is a monthly antibiotic she will take to protect her against RSV. RSV can be deadly in preemies and heart... more

Monday morning, Sophia still had a fever of 101.5. We made a 9AM app’t with yet another doctor at our clinic (who coincidentally was just in the news discussing the infant drug recall). He was... more

I was just weeping by the time I finished this article about a Tennessee couple with Down’s Syndrome getting married. It really saddens me to think of how rare it actually is and I worry about what... more

My apologies to everyone who has left comments over the past week. The new system requires comment moderation and I wasn’t aware that there were comments that needed moderating until tonight. I am... more

Sophia had her 6 month immunizations on Friday, including a flu shot (one of the two recommended for first-timers). She woke up Friday night about 3:30AM screaming with a 104.7 temp. (We had to do our... more

I spoke with the surgery team today and they let me know that Sophia is scheduled to go in for pre-op on the 26th and then back for surgery on the 29th at 7am. In a way it is a relief because the way the... more