Today started out with Grandma arriving at our house at 6:30AM (like she does most days she doesn’t work) to get to the hospital in time to wake Sophia for her 7 o’clock feeding.  On... Read More →

This first isn’t the type parents are normally proud of–she had her first explosive diaper, the kind that leaks out.  Unfortunately, it happened while she was nursing, so she left... Read More →

In rounds today, the weekend doctors were especially concerned about the fact that Sophia really hasn’t gained any weight since she’s been here.  They spent a lot of time debating how... Read More →

Yes, Sophia has another diagnosis consistent with babies with Down Syndrome.  Her test results came back really high (meaning her thyroid isn’t working properly), so they have started... Read More →

I told Sophia all day that since it was her due date, she was now old enough to eat like a full-term baby.  She did eat really well for a few of her feedings; stayed off all oxygen and... Read More →

Today was a day of milestones. Sophia slept on her stomach for the first time today, which, according to the nurses, aides in digestion and it really seemed to work since before her feeding... Read More →

Although she was briefly put back on a flow last night Sophia has been going all day without oxygen and her stats are remaining steady. She has also refrained from spewing all over me…... Read More →

Today at 8AM Sophia went in for surgery to repair a coarctation of her aorta. The two of us and her two grandmas got to the hospital really early so we could hold her before she went under... Read More →