We have a 3 year old!

Sophia turned 3 on Friday and gives you a big smile and holds up a few chubby fingers when you ask her if she's 3. We tried out the toddler open gym time at Gleason's Gym Friday morning, and they seemed to have fun crawling on the pads, walking on the squishy floor, and bouncing on the big trampolines. Zoe's favorite part, predictably, was the chairs and the play kitchen set in the waiting area; she also thought the drinking fountain was pretty great. Sophia loves the padded slide and watching … [Read more...]

Two are Two!

Our little Zoe turned 2 on Friday...so they are both 2 for the next 3 weeks. If you ask her how old she is, she will tell you "two," but she hasn't quite mastered holding up 2 fingers yet. We had ECFE on Friday, so they sang "Happy Birthday" to her (regular and "dance" versions), and had her favorites (cantaloupe and ice cream) for snack. She woke up to a new doll house and stood looking at it with a big smile saying "Excited!" On Saturday, we drove to Pelican Rapids to celebrate their … [Read more...]

A Heart of Gold

Note: Sorry for the delayed message; we apparently had a hacker in our site and we've had less time to do this taking care of two little ones this time. Apologies in advance for the length of this: Friday, Surgery Day: Sophia woke up around 1AM and I brought her into our bed thinking maybe the extra snuggles would help her sleep (and help us with our anxiety). She did pretty well until she heard the little gentle noises that precede the alarm (haven't had to use an alarm in ages). Then … [Read more...]

Surgery Day Updates

8:00 - Sophia was just taken into surgery. 11:21 - We were just informed that Sophia has been taken off of bypass and is doing well. They are finishing up so we should be able to see her within the next hour. 1:45 - Sophia is out of surgery and in the PICU now. She was just extubated and is looking great. … [Read more...]

Pre-op went swimmingly

Our appointment this morning for Sophia's pre-op went great. She is scheduled for 8AM surgery tomorrow, with a 6AM arrival (luckily she's been practicing waking before 5 for the last couple of months)! They anticipate it taking 1-1/2 hours just to put in the IV lines, get her set on the heart/lung bypass machine (which freaks me out to even write), etc. Because she is "hard to poke," I guess it takes longer. Hopefully, they'll go straight for the easy veins and arteries so she isn't pricked … [Read more...]

We’re Set for Friday the 5th

The surgeon consulted with the pediatrician we saw for Sophia's rash, and they concluded that it was fine to schedule her for surgery this week. In the meantime, her rash continues to improve (and so does her cough/cold). So, it looks like we are set for Friday the 5th, barring anyone else's emergency. We do have pre-op on Thursday at 7:45AM, so we should know more then. We also have a back up pediatric appointment on Wednesday just in case we are feeling like we need to have one more look … [Read more...]

No Rash Decisions

Sophia's rash is still lingering more than another week later. It seems to have become a little less red and irritated this weekend, however. The surgeon is consulting w/ dermatology on Monday and plans to schedule surgery for the week of the 1st if he gets the go ahead. We've been happy to have extra time to prepare, but as terrified as we are, we feel like it will be good to get it scheduled. Someday soon we'll update you on the rest of So & Zo's adventures. As Zoe would say: "Ha Ha … [Read more...]

No Surgery Today

Surgery has been postponed due to a rash. Sophia developed a rash a week ago on the back of her leg which has subsequently spread to her shoulder, hand and chest. We took her to the doctor on Saturday and he didn't think it would be an issue for surgery but during pre-op today they decided that it would be best to wait until it clears up. So...we are back in limbo. … [Read more...]

Subaortic Membrane Surgery Announcement

We received the call from the University that we have been waiting for. Sophia has been scheduled for a pre-op visit on Thursday and for surgery on Friday afternoon. … [Read more...]

Party Girls

Well, the holiday season has certainly led Zoe to believe that each day is another party.  She thinks each car trip should end at a party (preferably at "Ish" (Aisling's) "house").  They started with the Down Syndrome Ass'n's Christmas party.  True to form, they spent most of the time climbing the play equipment, until the music started, and then they were off to watch two funny little old men play carols.  Unfortunately, the wilder one was dancing so much that he almost stepped on Sophia, but … [Read more...]