she’s elite

Sophia had her first outpatient doctor visit today.  We spent all morning getting ready for a 12:45 appointment.  I had to laugh when they called yesterday to remind us–like we have anything else on our schedule!  We ate twice (at 1 1/2 hours a shot), tried nursing, took a bath, trimmed her nails (with her thumb nail getting some skin-ugh!) and got dressed in a cute little dress that she of course wore for just a small fraction of her visit.  Life has become much slower paced these days.  


She did a great job in her car seat (by the way, we aren’t just “babying” her about this car seat deal, with her heart condition, she can’t get her heart rate up too high, and so far, the car seat as been the thing to do it).  She cried a little when they did her blood draw for her electrolyte and thyroid test (they didn’t have Sweet-Ease at the clinic), and gained 3 ounces (unless the hospital’s scale is that much different).  She is at 3% for weight, 16% for height, and has the elite status of 0% for head size–apparently she has the smallest head of all 5 week old babies in the country!  Perhaps this helped in her delivery?  Sounds like we’ll have a hard time getting hats to fit over that wild hair, so we’ll just embrace it. There is a different growth curve for children with Down Syndrome, but this is where she falls among all kids–a little peanut.  


The appointment went fine, but we look forward to working with her primary pediatrician who also runs the Down Syndrome Clinic.  Although today’s doctor would have no way of knowing how we were parenting, we had been discussing with her the impact on Sophia’s reflux of our walking in the Baby Bjorn and spending time in the bouncy seat–but she still wanted to make sure to advise us most importantly to treat Sophia as though she was a baby–sing to her, take her for walks, give her tummy time…not sure what about us made her assume we would not be doing those things, but anyway, I’m sure she had good intentions.  We’ve realized going through this that we’ve become rather ageist–we have learned to really value the wisdom of the more experienced practitioners who really have a way of not being condescending, but helpful.  I think the worst comment was the nurse who suspiciously said to John when he was starting to give Sophia her bottle:  “Now Dad, have you fed her before?”  Luckily, John is getting used to baby books, magazines, and practitioners assuming Dads are idiots.


Back at home, Mukwa has become Sophia’s first babysitter–making sure to let us know if Sophie is making noise and needs attention.  She seems to be adjusting just fine and seems glad to have us back home, walking and playing more.